REMEMBERING BACK TO MY SURGERY

Please Note:  I am reposting my old blog on this site including old posts that were previously published on another site.  After I finish putting up all the old posts I will bring the new blog up-to-date with some new thoughts and posts.  Thanks for your patience. :)  Also, I am not adding all the previous people made from the old blog because I can't figure out how to add them however I appreciated each and every comment and have saved them all so I can go back and read them every now and then.  Thanks to everyone who signed the old blog.  Please take the time to add any comments you like to the new posts. Thanks :)

REMEMBERING BACK

Posted on August 19, 2013 by Gale

 

 

PART 1

 A  TRIBUTE TO MY DONOR

 

April 19, 2013 was a day of good news for me when I got ‘THE CALL’ from the hospital.  They had lungs for me!    I was also intensely mindful of the fact that for this family it was a day of sadness and mourning for the loved one they just lost. To make this easier to write, I am going to refer to my donor as him because even though I will never know for sure, I just always have the feeling that the donor was male. Yet, even in their grief they were compassionate and generous enough to honour their loved ones’ wishes to donate his organs.  My donor and his family are truly my heroes.  I do not say that lightly either; I mean it sincerely.   Even though the spark of life died in him that day, our lives forever meshed when his lungs were placed in my chest.  I pray his family takes comfort knowing that this gift saved my life and the lives of the other people who received organs from him that day.

In honour of the gift my donor made, I am asking any people who may read my blog, if you have not yet signed up to be an organ donor, please, please consider it.  It only takes a few minutes and so many lives can be saved or helped because of you.  It doesn’t matter how young or old you are, it doesn’t even matter how healthy you are.  There is always something that can be used thanks to your generosity.  

Remember to let your loved ones know of your decision to be a donor  and encourage them to become donors too.  I’m living proof that it works.   Thanks to my donor I am enjoying my grandchildren and my family and even planning for my future, a future I would not have had if not for my gift of life.  
Thank you in advance for your generosity and compassion in choosing to become a donor.

Go to   https://beadonor.ca/

 

PART 2

‘THE CALL’

 

Where do I start?  Well I may get sidetracked but for now I’ll start with the day that I got the call for which I had been  hoping and waiting.  It had been 3 years since I was first diagnosed,  and more than a year and a half since I had my first transplant interview and 5 months after being officially listed.  I doubt I will ever forget getting this oh so important and life changing call! 

April 19^TH   2013    

I attended TGH for my clinic appointment and my respirologist was quite concerned with the results of my tests.  I had performed poorly on the pulmonary function test and also on my 6 minute walk test.  Both these indicated I had deteriorated significantly since my previous visit 6 weeks earlier,  so he changed my status to “rapidly declining” and asked if I felt ready to be admitted to the hospital. 
I did not want to be admitted yet (I think it still had not sunk in how seriously my condition had gone down), but I was reassured by the fact that if I needed to be, they would arrange for me to be admitted. 

We were on our way home around 3:30 p.m. when Eric’s cell phone rang. 

I got an instant adrenalin rush when the person said she was calling from Toronto General and that they had lungs for me.  She wanted to know how long it would take us to get to the hospital.  My heart was pounding and my thoughts were racing ahead of me with a hundred questions but I tried to calm myself and focus as I explained that we had just left the hospital and we were on our way home.  We were near the Mississauga cut-off but being that it was rush hour, it would probably take us about 1 - 2 hours to get turned around and get back there. 

I wish I could say that the next thought that crossed my mind was for the donor and his family but in all honesty I was still too gobsmacked to think that clearly.

I remember thinking and praying that this didn’t turn out to be a false alarm, although I knew only too well from listening to other people’s experiences that it easily could be if the lungs turned out not to be in good condition.  I held my breath and used the back-seat-driver-brake

the whole time Eric cut across 3 lanes of traffic and took the next cut-off so we could head back to Toronto. 

 

PART 3

 TIMELINE AFTER ARRIVING AT TORONTO GENERAL

 PRE-SURGICAL

When we arrived back at the hospital Eric dropped us at the Elizabeth Street entrance and went to park the car.  My daughter Laurie and I went in and we walked down and got a coffee and muffin.  I know, I know, I shouldn’t have eaten but it had been a long time since I had anything to eat and I knew it would be even longer till I would get something to eat again, especially if the surgery was a go.  We finished our snack and then proceeded to admitting.  I was given a room on the 7^th floor to wait (and wait and wait) until we knew if the lungs were good enough to be transplanted.  Times are approximate but I’ll try to make a sequential list of events as they happened.

v5:30 p.m.      Admitted to my room on 7^th floorto wait for word on the viability of the lungs.

v6-7 p.m.        My youngest daughter Allison and my 12 year old granddaughter Emma arrived.

v7:00 p.m.      Two doctors from the transplant team arrived to meet me and informed me that the O.R. was tentatively scheduled for midnight.  The required tests and blood work were ordered.

v9 p.m.            Dr. B. returned to take my history and informed me that the surgery time had been changed to 3 a.m.

v10 p.m.          Then Dr. D. came in (yes it felt like they were taking turns J, and got me started on my first dose of Cyclosporine which is an anti-rejection med so that my body didn’t start rejecting the new lungs during the surgery.  Dr. D. told us he still hadn’t heard anymore with regard to the time of my surgery.

v11 p.m.          I finally fell asleep and Eric and the kids went and found a place to try to get some rest as well.  We knew if this surgery went ahead it was going to be a very long day and we were right!

April 20^th      7 a.m. – Dr. D. came in to announce the surgery was a go.   I honestly didn’t know whether to laugh or cry.  I was so happy and excited, but I was also so terrified.  I mean, this was it! They were about to take the lungs I was born with out of my body, and put someone else’s lungs in it. 

v8:45 a.m.      They came for me and took me to the O.R.  My family walked with me to the doors of the O.R. and we all hugged and kissed and said goodbye till later.  I remember that my 12 yr. old  granddaughter Emma cried a little but I re-assured her that I was going to come through this surgery just fine and she seemed to settle down a bit then.

v9 a.m.            I was fascinated as I looked around the O.R. 

There were so many high-tech machines and so many people and I knew my new lungs were nearby, breathing on the EX VIVO machine and waiting for me. 

http://www.youtube.com/watch?v=gXqMsraSb84

v9:05 a.m.      Dr. Yasufuku, the surgeon, came over and introduced himself to me and talked with me for a few minutes.  He was so calm and reassuring that his demeanor had a calming effect on me as well. 

http://www.uhnresearch.ca/researchers/profile.php?lookup=14277

9:10 a.m.      The anesthetist came over next and introduced himself and his colleague and then explained what they were about to do and that’s it, that’s all I remember.  The next conscious thought I had was when I woke up in ICU.

v10:00 a.m.    Prepping was completed and surgery began.

v2:00 p.m.      Right lung was in and breathing & then they began the left   side

v  6:30 p.m.      The surgery was finished and the surgeon went out and spoke to my family to explain all that had happened during the surgery.  I was moved to the ICU where I remain for the next 6 days.

PART 4

IMMEDIATE POST SURGICAL COMPLICATIONS

The first few days were fairly uneventful although they did withhold the cyclosporine because my creatinine levels were rising which is an indicator that my kidneys were not functioning quite up to par.  Considering the amount of drugs I had been subjected to during the surgery and the first couple days afterwards and the cyclosporine which is known to be hard on the kidneys, the elevated levels are not surprising.  They were hopeful that as my body adjusted, my kidneys would also settle down.

v  April 23^rd     my kidneys were still being very fussy and not liking all the changes and medications so the decision was made that I would need about 5 dialysis treatments over the next 5 days. 

v  April 25^th     I was taken off the respirator and given actual food to eat.  It tasted soo good even for hospital food.  I enjoyed it immensely!

v April 26th     I was moved out of 10^th floor Intensive Care Unit to the step-down unit on the other side of the ward.  Also today my heart decided to throw a little tantrum and went into Atrial Fibrillation which I was told is also pretty common after this surgery. 

At one point they actually had to give me an injection that reverted my heart back to its’ normal rate and rhythm.  The injection worked temporarily but the A-Fib actually lasted off and on for several months and was treated with several different meds. 

v May 2^nd      My last two drainage tubes were removed and I was transferred to the second step-down unit on the 7^th floor

v  May 3^rd          The A-Fib continued to the point where they decided to transfer me back to the 10^th floor step-down unit so they could treat it and watch me a little more closely. They ran some more diagnostic tests on me to make sure there were no blood clots or any fluid in my lungs.

v  May 6^th         My condition had improved enough to move me back down to the 7^th floor.

v  May 8^th         I spent the evening before going home packing up my things and then watching Pollyanna and Summer Magic on my laptop to pass the time.  I’ve always been a sucker for both Haley Mills and Disney Movies. J

v  May 9^th          Discharge Day!  I was finally well enough to be discharged.  I was very happy to be going home on this day since it was our 43^rd wedding anniversary and also I would be at home to enjoy my birthday 3 days later.  I was still feeling weak and my legs were feeling quite wobbly so I had to leave in my wheelchair but I didn’t care, I was just so happy to be going home. 

Till next time, stay well